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Praying for Tripp
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Contribute to the Fight Against EB

Next Stop - New York City Marathon
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We are selling 1,000 orange shoelaces to bring awareness to EB - Please Buy Yours Today!

Contribute to a Cure - Buy Your Laces today

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1,000 laces x $10 = $10,000
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Ellie's dad Andrew, her aunt Stephanie, and her uncles Michael & Gregg are running the New York City Marathon in November to raise awareness & find a cure.

Hear Ellie Talk about 1000 Laces 2014


CONTRIBUTE TO THE FIGHT AGAINST EB!

Please Join Us!

Butterfly Wishes for Ellie Event in honor of Ellie Tavani, a beautiful little girl who was born in April 2006 with Epidermolysis Bullosa (EB).

Our 8th Annual Butterfly Wishes For Ellie Benefit and Silent Auction was held on Thursday, May 22, 2014
at The Park Tavern in Midtown Atlanta.

With your help, we raised almost fifty thoughsand dollars at the event to benefit the Dystrophic Epidermolysis Bullosa Research Association of America (DebRA). DebRA will use these funds for research and funding to assist families like ours who are dealing with the daily struggles associated with EB.

You can always contribute to the cure of EB. The contribution page is a secure environment provided by Debra of America.
Donations are tax deductible.

This event benefits Debra of America


MORE ABOUT OUR ANNUAL FUNDRAISER


CONTRIBUTE TO THE FIGHT AGAINST EB!

 

Our 2014 Corporate Sponsor

Learn more about our sponsor, Molnlycke Health Care US, LLC


 
and

  2014 Fundraising Event Sponsors


Richard & Isabel Goldstein
National Rehab Inc.

2014's Individual Contributors

OUR PAST CONTRIBUTORS

In addition, the Tavani Family wants to take this opportunity to thank all Butterfly Wishes for Ellie supporters and all those who support awareness and a cure for EB (Epidermolysis Bullosa).

Andrew, Shawn, Ellie and Max

Each year, a week in October is devoted to Epidermolysis Bullosa (EB) Awareness.

LEARN MORE ABOUT A GIRL NAMED ELLIE

Ellie Tavani and her mom, Shawn Tavani

ELLIE WANTS YOU TO TELL A FRIEND ABOUT EB

Ellie and brother Max

Join Ellie's Newsletter and keep informed about EB Awareness

Meet Ellie Tavani - Summer 2013

Meet Ellie Tavani
Summer 2013

I WOULD LIKE TO VOLUNTEER MY TIME