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Help Find a Cure for the Worst Disease you’ve NEVER heard of …
Epidermolysis Bullosa (EB)
Our 13th Annual Fundraiser
Will be Held on November 7, 2019
Please Be Part of the Cure!
Contribute Today … Buy Your Tickets Online.
Your help is needed now!
Imagine being wrapped in bandages every day of your life to protect your body from everyday activities… such as walking or just putting your clothes on.
Imagine being afraid to hug your child for fear of causing a wound that will take weeks to heal.
Imagine being afraid to eat the foods you love because it will cause a sore as it blisters in your mouth.
Butterfly Wishes for Ellie Event in honor of Ellie Tavani, a beautiful little girl who was born in April 2006 with Epidermolysis Bullosa (EB).
Our 13th Annual Butterfly Wishes for Ellie Benefit and Silent Auction will be held on
Thursday, November 7th, 2019
at
The Park Tavern in Midtown Atlanta
Meet Ellie Tavani
With your help, we hope to
With your Continued Support We Can
raise more than $50,000 at our annual event
to benefit the
Dystrophic Epidermolysis Bullosa Research Association of American (DebRA).
DebRA will use these funds for research and funding to assist families like ours who are dealing with the daily struggles associated with EB.
This event benefits DebRA of America
Our Sponsors
Sponsorship Opportunities Available
Learn More …
The Tavani Family takes this opportunity to thank
Butterfly Wishes for Ellie Sponsors and Supporters.
Thank you to all those who support awareness and a cure for EB (Epidermolysis Bullosa).
Each year, a week in October is devoted to Epidermolysis Bullosa (EB) Awareness.
How can you help?
Other Families
Add Ellie’s link to your site.
