Home Page live

BECAUSE THE COST OF DOING NOTHING … IS TOO GREAT

Help Find a Cure for the Worst Disease you’ve NEVER heard of …

Epidermolysis Bullosa (EB)

Meet Ellie Tavani

With your help, we hope to

With your Continued Support We Can
raise more than $50,000 at our annual event

to benefit the

Dystrophic Epidermolysis Bullosa Research Association of American (DebRA).

DebRA will use these funds for research and funding to assist families like ours who are dealing with the daily struggles associated with EB.

The Tavani Family takes this opportunity to thank
Butterfly Wishes for Ellie Sponsors and Supporters.

Thank you to all those who support awareness and a cure for EB (Epidermolysis Bullosa).

Each year, a week in October is devoted to Epidermolysis Bullosa (EB) Awareness.

How can you help?

Other Families
Add Ellie’s link to your  site.