Imagine being wrapped in bandages every day of your life to protect your body from everyday activities… such as walking or just putting your clothes on.
Imagine being afraid to hug your child for fear of causing a wound that will take weeks to heal.
Imagine being afraid to eat the foods you love because it will cause a sore as it blisters in your mouth.
Butterfly Wishes for Ellie Event in honor of Ellie Tavani, a beautiful little girl who was born in April 2006 with Epidermolysis Bullosa (EB).
Our 13th Annual Butterfly Wishes for Ellie Benefit and Silent Auction will be held on
at
Meet Ellie Tavani
With your help, we hope to
This event benefits DebRA of America
Thank you to all those who support awareness and a cure for EB (Epidermolysis Bullosa).
Each year, a week in October is devoted to Epidermolysis Bullosa (EB) Awareness.