Your help is needed now!
Imagine being wrapped in bandages every day of your life to protect your body from everyday activities… such as walking or just putting your clothes on.
Imagine being afraid to hug your child for fear of causing a wound that will take weeks to heal.
Imagine being afraid to eat the foods you love because it will cause a sore as it blisters in your mouth.
Butterfly Wishes for Ellie Event in honor of Ellie Tavani, a beautiful little girl who was born in April 2006 with Epidermolysis Bullosa (EB).